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Publications

Neuroendocrine Tumors - A Primer For Healthcare Professionals: Published by the Healing NET Foundation, the Primer is an excellent resource for patients and healthcare professionals.  (Dr. Eric Liu is the Chief Medical Advisor of the Healing NET Foundation.)  To view the Primer click here.

Neuroendocrine Tumors, A Comprehensive Guide to Diagnosis and Management:
 This is the 4th edition of a comprehensive guide for patients and physicians published by the InterScience Institute. The guide is authored by several expert NET specialist physicians.  To access a pdf of this manual click here.

Gastrointestinal Carcinoid Tumors: This informative guide is available from the American Cancer Society.  To access a pdf, click here.

A Patient’s Perspective on Integrative Oncology:  Getting Past the ‘War,’ Living with and Beyond Cancer: Written by Josh Mailman, an extremely active member of the NET, Nuclear Medicine and Integrative Medicine communities, President of the NorCal CarciNET Community, Chair of the Patient Advocate Advisory Board for the Society of Nuclear Medicine and Molecular Imaging (SNMMI), Co-Chair of the Patient Advocate Taskforce for the Society for Integrative Oncology (SIO) and a member of the National Cancer Institute’s task force on NETs.  To read his perspective about the article, click here.  For the actual guidelines see the next article.

Clinical Practice Guidelines for Integrative Oncology (2009):  This article from the Society for Integrative Oncology summarizes guidelines for the use of complementary therapies such as acupuncture, energy therapies, mind-body modalities, and massage therapy.  For more information, click here.

Review of Carcinoid Cancer:  This review was written by Dr. Richard Warner, Medical Director of the Carcinoid Cancer Foundation.  He practices at Mt. Sinai Hospital in New York City.  The review is located on the Caring for Carcinoid Site.  For the English version click here.  For the version en espagñol click here

But You Look So Good (2013):  Stories from Carcinoid Cancer Survivors and the basics of Neuroendocrine cancers. This book shares the intimate stories of those living with a poorly understood neuroendocrine cancer and the time it takes to find a correct diagnosis; sometimes years. For more information, click here.

Becoming Sunny Susan (2013): Susan L. Anderson, or "Sunny" Susan as she's affectionately known, has dedicated her life to people affected by carcinoid/neuroendocrine tumors (NETs) and has become an energetic advocate for, and educator of, the disease. For more information click here.

Rollercoaster, A Cancer Journey (2002)In 1994, Wayne Tefs was diagnosed with carcinoid syndrome. "Rollercoaster" is an account of his journey from the onset of the disease, to eventually learning to live with it. Both practical and spiritual, the book is a must-read not only for those suffering from cancer, but for their loved ones, caregivers and even for those few whose lives have gone untouched by cancer. For more information click here.

Carcinoid Cancer, Zebras and Stardust: My Sister's Cancer Battle (2012 updated)This is the story of one person's relentless battle against carcinoid, and of the author's struggle to come to terms with the death of her beloved sister. Inside, you'll also find the words of some of the world's top carcinoid specialists, invaluable reference data, and a comprehensive list of the top carcinoid specialists.  For more information click here.

Carcinoid Tumor Overview (2008):  Cleveland Clinic review article focusing on the difficulty diagnosing carcinoid tumors.