Clinical Trials

Clinical Trials are an important part of NETs research as they help provide new treatment options for NET patients.  As with any medical information, please consult with your oncologist and medical team before making any changes in your medical treatment.  

SD-OC Carcinoid/NETS provides the information on clinical trials as a convenience to our readers.  The listing may not be complete or up to date and you should visit ClinicalTrials.Gov to do additional research.


NIH Familial Carcinoid Tumor Study:  This study will evaluate members in families with a history of small bowel carcinoid cancer to study the natural history of those family members that have the disease, determine ways to improve early detection by performing surveillance on those at risk but without disease and to identify the gene(s) that may cause the tumors. Familial carcinoid tumors usually originate in hormone-producing cells that line the small intestine or other cells of the digestive tract. The tumors are slow-growing and usually take many years before they cause symptoms. It is known that these tumors occur more often in some families and are then passed from one generation to the next by inherited genes. Click here for a link to the study parameters.

Phase III Trial of TELESTAR: Telotristat Etiprate for Somatostatin Analogue Refractory Carcinoid Syndrome is entering into a phase 3 trial after a successful phase II trial in Europe.   The primary efficacy endpoint of the phase 2 trial was the reduction of bowel movements from baseline in patients with metastatic carcinoid syndrome who were refractory to or could not tolerate somatostatin analog therapy. This trial is ongoing but no new patients are being recruited.